Hemic Diseases
Registry of Hemic Diseases
The Registry was created by the non-profit partnership for healthcare programs development and implementation “The Healthy Future” in cooperation with the National Hematology Society and the Hematology Scientific Center.
It was designed to obtain reliable data on epidemiology of hemic diseases, as well as clinical and economic efficiency and safety of particular drug therapies.
Additionally, in 2013 a number of sub-registries were launched to include the following hemic diseases:
- Acute lymphoblastic leukaemia (ALL)
- Pregnancy in Chronic Myeloid Leukemia
- Hemophilia with inhibitors (RHI)
- Idiopathic thrombocytopenic purpura (ITP)
- Multiple myeloma (MM)
- Gaucher disease
We plan to expand the list of conditions to be studied under the Registry.
The Registry allows tracking patient status over time, generating automated reports and assessing incidence and mortality rates as well as accumulating adverse events data.
